Down Syndrome Creed

My face may be different but my feelings the same. I laugh and I cry and take pride in my gains. I was sent here among you to teach and to love as God in the heavens looks down from above. To Him I'm no different, His love knows no bounds. It's those here among you in cities and towns that judge me by standards that man has imparted, but this family I've chosen will help me get started. For I'm one of the children so special and few that came here to learn the same lesson as you. That love is acceptance, it must come from the heart; we all have the same purpose, though not the same start. The Lord gave me life to live and embrace, and I'll do it as you do but at my own pace.

 

My little man is now a little over 5 Months!! He has now accomplished rolling over! I am one proud mama of course! Bentley went to the Doctor last week and got his 5 month shots, which of course didn't go well & he cried his little heart out once again. 

Every morning I roll over and look at Bentley, & I always get that same handsome smile, & I wonder how I was so blessed with this handsome little boy?! & gibber gabbering is all he does!

I know this has been a little update but I will definitely be back later to finish updating & put up more pictures!

I'm not lucky; I'm BLESSED; YES!!

I know, I know....

Its been awhile since I've updated but here I am now updating this so its all good right?

So for awhile now its been Bentley & Me. It seems like its been for the best! I haven't been as stressed out, and I've spent alot more mommy and baby time with my little man! I haven't felt like I owe somebody anything, I don't anybody an explanation of why I can't do this or why I can't do that--because my little man comes first and foremost before myself or anybody else. Companionship would be great to have, and have somebody that would listen when I need someone to talk to, or when I want to just cry, just have a shoulder to cry on. But thats something I have no control over, and so I'll wait for somebody to sweep me off my feet!

Bentley and I did spend some time with his biological father, but of course everything came back down to the same thing, he had other things he would be doing than spending time with his son or me. So the way I see it thats fine, I tried, and he will be the one to regret it.  Its crazy how much they look alike. I see the joy in Bentley when he's with Chris but I can't control how Chris acts about him.

See there really did use to be a time when he got excited about Bentley and couldnt wait for him to get here, but time changes everything.

Bentley seems to be getting longer and longer, but I'm starting to wonder when he will actually start gaining weight, my little man can still wear newborn  clothes at almost 5 months old. But Bentley eats like a totally hog! I've figured out his favorite foods are apples, peaches, bananas, and squash!

Bentley loves to babble, and he babbles about anything and everything. He loves to be talked to, to watch T.V. and anything that moves he'll watch. He is doing great in play therapy and even trys to crawl now!

Well thats all for now, I have so much more I could go on and on about with Bentley but of course my little man is awake and hungry! So when Bentley calls mommy of course comes to his beckon call!

Until Next time,

I'm not Lucky; I'm BLESSED--YES!!!

Bentley & His Bells.

It seems as if Bentley is getting bigger and bigger every second! He amazes me everyday! I am one proud mama! He is starting to hold his head up by him self, and My Oh! My! does he love to make noises! If he makes a noise and I repeat him, then its on!! We can go on with each other for at least an hour! He has this mad obsession with bells, anything with bells, or the sound of a bell brings a smile to his face, and oh what a gorgeous big smile my little man has!

I can honestly say, because of Bentley I know what love is. He has changed my life so much its unimaginable. I found out I was pregnant last year a week before Fathers Day that I was pregnant. It wasnt something that I was expecting, I wasnt even trying to have a baby. Last year this time, my life was my life, I was going to do what I wanted. When I wanted, and nobody and I mean NOBODY was going to stop me.

As soon as I found out I was pregnant, I fell in love. Fell in love with a child I had never laid my eyes on but this child was going to be mine, mine forever. I would love it, and it would love me in return.

I never imagined I could have love for something as much as I have love for Bentley. He is my entire life, he is my world, my life, my entire life revolves around him! The day I had my first ultrasound, and saw that tiny little heart beat I was madly and completely in love.

That sweet little face of his gets me through anything, any hardship, and sickness, and pain. All I have to do is look at this little life and instantly everything is better! He amazes me at everything he is starting to accomplish. The Dr. told me not to expect Bentley to be a Dr., or president, or anything big. But I have hope, and I have Bentley. No matter what Bentley decides to do in life. He will always have his mommy right there beside him all the way!

Until next time, remember,

I'm not lucky--I'm BLESSED; YES!!



Why?

Down Syndrome affect 1 out of 800 babies born. Sometime I wonder why Bentley? I wouldnt change the fact that Bentley has Down Syndrome for anything in this world. But I just cant help but wonder, what did I do to deserve this little boy? This little boy that has taught me more about life in 3 months and 5 days than I've learned in the almost 21 years that I've been alive? Every morning I wake up and see these gorgeous blue eyes and this sweet face looking up at me.

Now that I have Bentley in my life, I cant imagine my world without him. Nor would I want my life to not have him in it. Hes such a sweet and good baby. He loves gibber gabbering now and he loves when I talk back to him. 

Complete strangers have stopped me in the store or I've noticed them glancing back at Bentley. It makes me wonder do they know, somehow do they know that Bentley has Down Syndrome? Are they judgemental of me because I've brought this child into this world that has Down Syndrome? I really do not care what people think of me or Bentley. We have each other and our family and friends that have been there every step of the way!

On Another note Bentley does to the eye doctor on Tues. for his eyes, this is routine for babys with Down Syndrome. So I hope and pray that everything turns out for the best and if God has other plans for Bentley and his eyes then its another part of life that Bentley and I will deal with as it comes along.

I'm Not Lucky--I'm BLESSED!--YES!

Mothers Day & Other Updates..

Bentleys first easter was great, we had dinner with my family and then spent the night with William. The weekend before that we went to an easter egg hunt for children with Down Syndrome. There were quite a few kids with Down Syndrome there, each one special and beautiful in their own different way. I had quite a few people say to me, "It took us awhile to take our child out and get involved." But the way I see it is. Bentley has Down Syndrome, theres no cure for it, hes always going to be Bentley and I'm not ashamed. Heres some pictures from Bentleys first easter.

On Friday, 5/6/2011 Bentley went back for his 3 month well check up. He is now 23 inches long & 11 pounds 2 ounces. Dr. Cerjan Bentleys doctor said he was small on the normal chart, that if I wanted him to he could chart Bentley on the Down Syndrome Chart. But I sit and wonder, whats the big deal if hes charted on the regular chart or the DS chart? Can't things be simple for just once, just one time please? Cant I just leave him on the normal chart? Whats normal? What the definition of normal somebody please tell me, is anybody on earth truely normal? I dont think so, we all have our flaws no matter what they are. Bentley got 2 shots and had to take a medicine by mouth. Everytime he gets shots it just breaks my heart, and the look that he gets on his face and the way that he crys and the crocodile tears makes me want to cry and punch the nurse that gave the shot in the face.

Today was my very first Mothers Day! I didn't need any gifts, because I have Bentley. I will always have Bentley and I truely could not want anything more than him. I never imagined being able to give one little boy so much love. I could never imagine loving anything more than I do him. Awhile back I was in the Drs. office waiting for my checkup not long after I had Bentley, and Dr. Herring came in and apologized for being late but she had to do an emergency DNC. I thought alot after that. Here I am just blessed with a little boy, yes a little boy with Down Syndrome and I thought it was the most horrible thing that Bentley had DS. But here was a woman, a family, losing a child. I have no idea who the woman was and never will, but my heart broke for her. It made me realize yes Bentley has Down Syndrome, but hes alive, so far everything with him has checked out great, so once again, I've been truely blessed.

Mommy Loves You Bentley Dean Carpenter!!

This is the face that I woke up to on Mothers Day, the face that kept me smiling all day long!!



Finally...Some Relief!

Bentley had to go to the heart Dr. last week since he has Down Syndrome the Drs. said that 40% of children with DS have a heart condition or problem. Well his blood pressure was good, his EKG was good. They weighed him and my little man weighed 9lbs 10oz. and is almost 24 inches long!! He peed all over the nurse while he was getting weighed and then peed and pooped all over the table when I was putting his diaper back on. The Dr. came in and listened to his heart and he said he didn't hear anything wrong, and that his EKG looked great. But he said you never can tell until you actually look at the heart, so they did an ultrasound of his heart! He was being so funny by this time and the ultrasound technician couldnt keep him from coming unswaddled and getting the ultrasound gel all over him! But his heart was great they said! So my little man is free of heart problems! The Dr. said that it is very unlikely that he could have any heart problems in the future. The only thing he had wrong was one of his main blood vessels for his right arm is attatched to the wrong spot on his heart but he said that its not uncommon for that to happen and that its fine like that & that it doesnt cause any problems. :) Like I always say, "I'm not Lucky; I'm Blessed--YESS!"

Wordless Wednesday :)